Our Purpose

The Luca Rising Foundation is a nonprofit organization dedicated to supporting families of children with rare medical conditions—particularly those facing congenital athymia and other complex health challenges. Founded from lived experience, the organization exists to bridge the gap between medical care and real-life family needs.

Through financial assistance, emotional support, advocacy, and awareness initiatives, Luca Rising empowers families during some of the most difficult moments of their lives. The foundation combines compassion with action—creating tangible support systems while amplifying the voices of medically complex children and their caregivers.

To provide financial, emotional, and advocacy support to families raising children with rare and medically complex conditions, ensuring they are never alone in their journey.

A world where every medically complex child and their family has access to the resources, support, and hope they need to thrive. 

We urge you to take the following actions:

1. Educate Yourself: Learn more about Complete DiGeorge Syndrome and congenital athymia to understand the profound impact of this ultra-rare condition on affected children and their families. Knowledge is the first step towards meaningful support.
2. Amplify Our Voice: Share Luca's story and the vital information on LucaRising.com within your networks. By spreading awareness, you contribute directly to a greater understanding of athymia and the urgent need for continued research and family support.
3. Contribute to Our Cause: Your financial contributions are essential to sustain our efforts in providing vital resources, advocating for affected families, and supporting initiatives that advance the care and treatment of congenital athymia. Every donation, regardless of size, makes a tangible difference in the lives of these resilient children.
4. Engage and Connect: Join our growing community by following Luca Rising on social media platforms and participating in our outreach initiatives. Your engagement helps foster a powerful network of solidarity and hope for families navigating this complex journey.