Our Purpose

The Luca Rising Foundation is a nonprofit organization dedicated to supporting families of children with rare medical conditions, particularly those facing congenital athymia and other related complex health challenges. Founded from lived experience, the organization exists to bridge the gap between medical care and real-life family needs.

Through financial assistance, education, emotional support, advocacy, and awareness initiatives, the Luca Rising Foundation empowers families during some of the most difficult moments of their lives. The foundation combines compassion with action to create tangible support systems while amplifying the voices of medically complex children and their caregivers.

The Luca Rising Foundation empowers children and families affected by congenital athymia through education, advocacy, connection, and meaningful support. We work to bridge the gaps in information, care navigation, community understanding, and family resources so that no family facing congenital athymia is left to navigate the diagnosis alone.

 We envision a future in which every child with congenital athymia is identified quickly, connected to appropriate medical care, and given the opportunity to thrive. Our vision is to build a nationally recognized organization that unites families, physicians, researchers, healthcare systems, industry partners, and advocates around a shared commitment to improving diagnosis, treatment access, long-term outcomes, and quality of life for people affected by congenital athymia.

We urge you to take the following actions:

1. Educate Yourself: Learn more about Complete DiGeorge Syndrome and congenital athymia to understand the profound impact of this ultra-rare condition on affected children and their families. Knowledge is the first step towards meaningful support.
2. Amplify Our Voice: Share Luca's and the other athymia patient stories along with the educational materials within your networks. By spreading awareness, you contribute directly to a greater understanding of athymia and the urgent need for continued research and family support.
3. Contribute to Our Cause: Your financial contributions are essential to sustain our efforts in providing vital resources, advocating for affected families, and supporting initiatives that advance the care and treatment of congenital athymia. Every donation, regardless of size, makes a tangible difference in the lives of these resilient children.
4. Engage and Connect: Join our growing community by following the Luca Rising Foundation on social media platforms and participating in our outreach initiatives. Your engagement helps foster a powerful network of solidarity and hope for families navigating this complex journey.